Monday, December 28, 2009
What? A wot wot?
Emily with her new bike and a large, noisy accessory.
Wednesday, December 23, 2009
Monday, December 21, 2009
Wednesday, December 16, 2009
But I also get the not-so-nice comments. Like the other day at the optometrist, when a man and his wife came in to the waiting room. Luke LOVES men, so went straight over and put his arms up to be picked up. The man scooped him up and bounced him on his knee. Then he got on the floor when Luke brought him a toy car, and played with him for ages. It was lovely...until another lady in the waiting room commented on how friendly Luke was to the man who was playing with him. At this point, the guy's wife piped up and said "Yes, most of them are like that."
All I could do was blink back the tears. Luke is not a 'them' who is friendly because he has Downs. My other kids are social too. He is a person, not a syndrome.
I get people saying something offensive or insensitive every week. This has only started since he is bigger and the facial features of DS that he has are more noticeable. How do I cope with this without taking it to heart or saying something that makes me sound like a b***h?
It's getting to me.
On the good side, Luke has passed his eye test, and won't need testing for a couple of years. Yay! One less appointment to be getting to :)
Wednesday, December 2, 2009
Also note the little brother, who is obviously fond of creamed rice, recognises the tin, and as his mother is starving him, moves in for the kill!
Luke finds the strangle hold useful for subduing the big brother in the pursuit of food!
A brief respite as he eats a mouthful that the big brother has been kind enough to share :)
It obviously takes a bit to get Ben's attention!
Friday, November 13, 2009
Monday, November 9, 2009
So we now know how he does it- he goes from the spiderman crawl position, and using those abs, just stands up, bending from the waist. Very clever. I am so excited that I have been modelling this move maniacally and repeating "Stand up, no hands!" and raising my arms in the air to prove it. I must look like a loon ;) (As if I am not...)
I will try to catch him in action soon, but you know how it is with kids and cameras.
Oh, and Ben has another strep throat which requires a third round of antibiotics-sigh- but hopefully he'll be better soon.
Friday, November 6, 2009
When the time came for the meat to be cooked, I overheard Ben excitedly telling Neil that we were having sausages. To which Neil replied, "No, we're just having these chops. There aren't any chops". Cue Ben's exclamations of frustration and disgust: "But I hate chops and MUM said we were having sausages". "Well there are no sausages here Ben". At which point I piped up that we were having chops AND sausages, which were on the bench, ready to go. "No they're not" said my ever-loving husband. I cast a disbelieving eye over the bench, ready to blame him for a poor effort in looking, but no sausages.
Then the penny dropped. That b****y dog! We all race outside, to discover fragments of plastic wrap and polystyrene all over the lawn, but not a scrap of sausage anywhere. I hate that animal!!!
Luckily I had more in the freezer, so all's well that ends well.
On a similar note, I have had Emily scrubbing coloured pencil off my window sill this morning and Luke throwing nutella sandwiches across the kitchen, and it's only 9.30am!
Oh, and earlier this am, Neil turned around and there was Luke, standing in the middle of the floor, standing up all on his own! We have no idea how he got to that position, but he can obviously do it, sneaky little monkey!
Monday, November 2, 2009
This is Aidan. He is about 3 months younger than Luke. He is also the youngest in his family. Like Luke, he is a mover and a shaker! We love Aidan.
Here are the boys just hanging out together.
Probably getting into trouble together (and we suspect there will be plenty of that into the future!)
This is one of Aidan's favourite pastimes. Sorry Vanessa, but I had to put it in! :)
So the plan is that the boys will be friends throughout their lives. And no we have not consulted them, and no we are not planning to! They may like to go flatting together, and get up to boy stuff together. Like trouble. And I am happy with that, it gives me some respite from my worry. Luke has a friend who will 'get' him, who will not judge him, who is on the same level as him. This is the beginning of a beautiful thing.
Which is not to say that there is no competition between them, or actually between their mothers, as to who will walk first. Because there is. And that's normal too!
Tuesday, October 27, 2009
Neil made these parallel bars for Luke over the weekend. There is a set at the Champion Centre which Luke is beginning to use, and so instead of being frustrated, we got busy. I say 'we' but read 'Neil got busy' unless bossing him around counts! Thanks to Gillian for her tips too.
I think this boy is pretty cute, and he's finally feeling better. Yay for spring :)
Sunday, October 25, 2009
Then we had the paediatrician for Luke- a regular check- on Friday afternoon. He passed with flying colours, and all his blood tests came back clear, which is great news. We are still waiting for an exact measurement on the size of the ASD- just to see whether it is now so insignificant that we can leave it forever, or whether he needs a further scan when he is 4 to keep an eye on it. Either way, I'm happy. Other than snot and a weird viral rash, he was fine.
Cue Friday night, when after his antibiotics he started vomiting. Great. Poor little boy had a very gurgley tummy, but once it was empty he slept through the night. Yay! Shame his brother and sister did not oblige. So off to the emergency doctor on Saturday for a change of antibiotics. I wrote Neil a list of what had been going on and sent him. I think I have had my fill of doctors lately. The guy he saw has a 17 year old daughter with DS, another of those weird coincidences :)
Luke was all better yesterday, and with diminishing snot levels. Someone has to keep Kleenex and the local doctors in business ;)
Here's hoping for a week free of doctors!
Saturday, October 17, 2009
Or climbing up onto the couch for a cuddle [the big boy's tongue out is for the camera, not the brother :) ]
Monday, October 12, 2009
Helping Dad in the garden.
Monday, October 5, 2009
Well, I recently found a NZ made version, and it is about 1/4 of the price, so of course I got one! The tray is at a great height, and it fits at the table, so Luke can join us in family meals. It is easy to clean as well, which is a huge improvement, and it looks great. I love it!
Friday, October 2, 2009
Wednesday, September 30, 2009
When I got to the doctors he got even worse and was crying so they put me in the nurse's office to have a quick check-up with her and be n the airconditioning as it was getting hot. They then informed me that there had been two emergencies and so there were 6 people ahead of me! I was not best pleased, even thought I know it was no-one's fault. They juggled things and I only had to wait for 2 others in the end. The doctor is very thorough and decided to send him to the hospital for assessment as he had some crackles on his lungs.
So off we went at 5pm last night. We saw two doctors there, and had his oxygen sats checked and a urine sample etc, and were given some preventative antibiotics so thankfully we were home by 8.15 pm. He is much better today, so here's hoping we get a full night's sleep and he's even better tomorrow. Fingers crossed.
Monday, September 21, 2009
Look how cute they are sitting together!
Luke got a special cuddle with the Police puppy.