Wednesday, September 30, 2009
When I got to the doctors he got even worse and was crying so they put me in the nurse's office to have a quick check-up with her and be n the airconditioning as it was getting hot. They then informed me that there had been two emergencies and so there were 6 people ahead of me! I was not best pleased, even thought I know it was no-one's fault. They juggled things and I only had to wait for 2 others in the end. The doctor is very thorough and decided to send him to the hospital for assessment as he had some crackles on his lungs.
So off we went at 5pm last night. We saw two doctors there, and had his oxygen sats checked and a urine sample etc, and were given some preventative antibiotics so thankfully we were home by 8.15 pm. He is much better today, so here's hoping we get a full night's sleep and he's even better tomorrow. Fingers crossed.
Monday, September 21, 2009
Look how cute they are sitting together!
Luke got a special cuddle with the Police puppy.
Wednesday, September 16, 2009
Wednesday, September 9, 2009
When I took off his nappy tonight, it was full of sand! I don't know what he does in that sandpit, but an awful lot comes inside. So I decided to give him a quick dip in the sink, as it was so warm in the living room with the fire going and he doesn't sit down in the bath any more.
Sunday, September 6, 2009
Here he is practising his drawing. He is also learning to draw dots and lines 'up' and 'down' the page.
Luke is also learning to open lids- fine motor as well as cognitive development. Look out mum! I love the look of concentration on his face here.
Luke is working on the concept of things which are the 'same'. He does this by matching the card with the picture when we do our sign work, and again here where he finds the things which are the same.
He is also working on sorting objects by size. He can already stack objects, and is now learning to slot the cups one inside another. This is currently one of his favourite tasks.
Luke is learning to sort shapes here and is getting better each time. He also does simple puzzles and other activities. He loves working with M and this is one of his favourite times during therapy. He just loves the challenge and always tries really hard to have a go. He is a quick learner and I am always so proud of him when we have finished our day.
Next moved to the Speech Language Therapist. We discuss any feeding issues, but we don't have any. Luke eats 1-2 meals off a spoon, has finger food for snacks and feeds himself dinner, so no worries there. I tell her about Luke's new words for the week, which this week included "Chris", 'grass' and "Ella! On your bed!" Ella is our dog, and that is what I probably say the most! She also gives me ideas for how to continue this good work and anything else which arises.
Then we work with P the physio. I need to check with another mum before I post a photo as her child is in it too. At the moment Luke is working to strengthen his core, as preparation for walking. He walks behind a trolley and cruises around furniture. He has recently learned to ride a ride on, and this will help with the core strength too. We also have lots of 'horsey rides' with Dad as the horse, play with the swiss ball, bounce on the tramp and have him walk as we hold his hands.
Luke is doing really well, and he loves his therapy sessions. I am sure it is the highlight of his week, and he is always asleep before we hit the road on our way home.
So thanks ladies for all you good work with our Luke Skywalker, and all the fun you have doing it. I can't tell you how much we all appreciate it.
Friday, September 4, 2009
We travel an hour and a quarter once a week to attend this centre. It is not home-based. I take Emily with me most of the time, but have found someone to help me out now, so that she will not always come and won't miss kindy so much.
Therapy is not just for Luke, it's about me too. I don't want people coming into my home non-stop just because Luke has a disability. I don't have this happen for the others, and I can be trusted to do my best without the powers that be deciding that they need to check us out. Yes, the centre is not Luke's natural environment. Neither is school for Ben or kindy for Emily. That doesn't mean it's not valuable or that they can't learn there. It's good for me to get out of the house and to not worry about the state of tidiness if I have professionals coming here all the time. It's good for Luke to be in a group setting and to be like everyone else. I love being just the same as all the other mums there. That they, like me, see Luke as Luke. Not Luke the boy with Down Syndrome. No stupid questions. Just other parents and their kids and celebrating their achievements and supporting each other and just being 'normal'.
There is measuring of progress, not against what 'typical' children are doing, but against what he has learned and what his next step should be. Making sure his development is progressing evenly across all areas.
The therapy is holistic. The therapists work together to teach Luke as a person, not seeing only his needs in their area of expertise in isolation. They KNOW him. I think they love him too. We focus on PLAY and I come away each week with a few ideas to try with him through play. He loves going and it is FUN.
We start each week with a shared morning tea, followed by a music therapy session. This is great, and allows us to reinforce sign as well as other concepts such as directions, animals, parts of the body in a way the kids enjoy. Luke has trouble sitting still! Then we rotate through the therapists.
Here is Luke working with L, the Communication specialist. We are doing a version of the Downs Ed See and Learn programme. Luke has the flash cards with the photo on one side and the word on the other. They look at the picture, and L signs the word as well as saying it.
Then Luke posts the card into the box. This is his favourite part!
He is excited to have grabbed two cards at once! Now he matches the photo on the card to the same one on the board. He is very good at this. He is also working on 'same' with his Early Intervention Teacher.
L signing 'washing' as Luke looks at the photo on his flashcard.