There is a fab NZ website called Upside of Down, which I have mentioned before. It offers an online community where parents (and friends, family and professionals) of children with DS can get together, and I have found it really helpful. I have come across several parents who take their children to the Champion Centre there too.
Recently- like yesterday!- a US version opened, and Nykie (the brains and drive behind the whole thing) is keen to find out if anyone is interested in being involved in setting up a UK version. Anyone out there interested? Nykie is able to help out of course.
The NZ site is www.upsideofdown.co.nz and the US site is www.upsideofdownusa.ning.com.
Well worth a look :)
Meet Me in St. Louis
2 months ago